Monday, August 6, 2012
In interviews I’m always asked how I’m doing what I’m doing and, sadly, I don’t think I’ve given the perfect answer and quite possibly the answer is too long because it isn’t that I, exactly, did everything by myself. As I think of other people on the spectrum that have success stories they too didn’t just make it without effort as always there was a supporting cast of heroes. So it is to you, the real heroes of the autism spectrum, that this blog post is written for.
To the parents: I’m not a parent, but I would have to think that everything changes when the doctor breaks the news of, “you child is on the autism spectrum.” That moment, that singular moment when the world comes to a complete halt and the only thing existing in the universe are those doctors words, is a life changing event. That moment can be taken many ways, but at every presentation I do there are parents who charge full speed ahead. “What more can I do?” and “What do I need to understand better?” are questions I hear every time. The importance of parents can’t be stated enough; what you see from me was done because of the support I got throughout my life even before my diagnosis. As I write this I am truly thinking of hundred, if not thousands of parents I’ve met that would give anything for their child on the spectrum and just by doing that I think they already have given so much; the time, the willingness to learn, and making sure their child has every opportunity to grow as possible. That, in my opinion, is nothing short of being a true hero.
To the teachers: I can’t imagine being a teacher; I mean, to speak to a large classroom each and every day and managing all the different personalities while somehow maintaning your own sanity is a steep effort I’m sure. Also, and I think this is a shame, on the news we never hear of the normal teacher; the one who goes that extra mile to make sure that their students are going to reach their full potential as the news will only focus on the unfortunate incidents where a teacher has made a bad choice. However, I have met the normal teacher, the one who sheds tears at my presentation because, I’ve heard this so much, “I wish I knew back then what I know now!” With the rates of autism/Asperger Syndrome on the rise I thinkevery teacher will encounter at least on person in their career and I will be the first to admit that we can be a handful to handle; I know I was as I asked “why?” at least a dozen times a day as I didn’t just want to know the facts but I wanted to know why it was that way. I wasn’t trying to be annoying, but I just wanted to understand the whole picture. Also, I was the first to correct the teacher if she broke a rule or misstated a fact; again, I wasn’t trying to undermine her position but rules are rules and facts are facts. And to be perfectly honest each teacher I had was overly patient with me and at the time I wasn’t diagnosed. In fact, they always explained the rest of the story or the rest of the facts afterwards when I was still enquiring. Teachers… you have so much power in giving us on the spectrum the power to grow. I wouldn’t be where I am today without the teachers I had and to each teacher that cares so much about their pupils that they will shed tears thinking back on past students and to the teachers that think outside the box to give us the best platform to flourish, well, I think that constitutes hero status.
To the therapists: Before my work at TouchPoint I had no knowledge that there was any hope for change out there but since my first time through TouchPoint’s parent training program I now know the potential and it lies within the hearts of the therapists. It takes a person with a strong heart to work with children on the spectrum as the progress sometimes can be slow and the level of patience needed is great. However, day after day across the country these therapists are giving it their all to unlock the human potential for those on the autism spectrum. Working at TouchPoint I’ve met many of these amazing people and I know I’ve never said it but I see these people as some of the strongest, selfless people out there. I could write on and on about the sheer dedication it takes, and the fact that they may never know the end result of their work in 20 years, but in the end it is these selfless individuals that have chosen a difficult line of work and they give it their all to enrich the lives of those on the spectrum with growth and that, without a doubt, is a sign of a hero.
There are many more segments I could write about; the police officer who handles an autism case with grace and patience or the doctor who has a full knowledge of the autism spectrum and gives the parents a full array of options and with it the most important word of all, hope. There’s one thing that ties each aspect I’ve mentioned together though and that is a heartfelt passion to give the person on the spectrum each and every chance to become more and to grow. As I started this out with, when I’m interviewed the interviewer wants to know about me but in all reality over in the hidden shadows in a long list of all the heroes that helped me along road in life to get to where I am now. Some know who they are, others will never know, but the where I am today would’ve been impossible without them. So to all that have had a profound impact, or even a small impact, in the life or lives of those on the autism spectrum I salute you, the true heroes. The world may never know the impact you have made, but for that one person you helped, in their heart, they will remember you forever.